Kerrod(i)s brave heart

风清扬斈 15年前 (2006-04-18) 网络资料 7818 0

 

Presenter: Wayne Shearman

Tuesday, 26 October  2004 

Kerrod Patterson
Kerrod meets former Australian cricketer Steve Waugh in Sydney

They say special children come to special parents.

And for Karri-anne and Shane Patterson, this is doubly true. When their six-year-old son Kerrod was diagnosed with Duchenne Muscular Dystrophy (DMD) three years ago, it was a trying time for the family. But Karri-anne was spun into a depression when her youngest son Braydon was diagnosed soon after.

It took just one hour for Karri-anne and Shane’s worst fears to be realised.

“Kerrod was three when we found out he had DMD, the only reason we knew something was wrong was because he couldn’t walk properly and he had enlarged calf muscles. We took him to a paediatrician and within an hour we had the results back. It wasn’t the nicest of times,” Karri-anne recalls.

Normally a genetic disease, DMD brings on general muscle weakness and wasting usually in the pelvis, upper arms and legs first. Survival is rare beyond the early 20s.

“It’s supposed to be a genetic disease that’s passed down through the family, but we don’t have anything so it’s started with us,” Karri-anne says.

“They give sufferers a lifespan of between 15 and 20 years, that’s the part that we found really hard. It doesn’t bother us that he’s in a wheelchair. We also have another son, Braydon, who has the disease as well, which was another shock.”

With so few years under his belt, Kerrod is proving to be an inspiration for his parents.

“He’s the one that keeps us going. When I found out about Braydon, it broke my heart and I didn’t know what to do. I went into a deep depression and I’d have this smiling little face at me every morning saying ‘come on mum, get out of bed’. He’s kept me going and I just decided that I needed to be positive for him,” Karri-anne says.

In fact his ability to be brave in the face of adversity has earned him a TAKE 5 Young Bravehearts award, and mum says he’s always been a positive child.

“I think it’s in his personality, he’s just special. He’s always been like that and it took a little while for me to get used to him trying to keep things positive for everyone else.”

“The other day I was doing my hair in the bathroom and I couldn’t quite get things right. He said ‘mum, what are you doing’ and I explained that I was trying to do my hair without much luck and he said ‘mum you look beautiful the way you are’.”

Karri-anne says Kerrod was excited to meet Australian cricket legend Steve Waugh when the family went to Sydney for the Young Braveheart finals. And he has the rather amusing memories on tape to prove it.

“I let him tape with a video camera we had, he was taping Steve Waugh. And when we had a look at the tape, he had been taping Steve Waugh’s bum for a really long time by accident. He thought it was hilarious.”

Kerrod says that his special video tape was the highlight of his trip and lunchtime is his favourite time at school. Karri-anne says that’s probably because the kids fight over who gets to push him around.

“We’re really lucky because the teachers have taught the kids not to be ignorant, they’ve been taught about all different kinds of disabilities so that they don’t pinpoint Kerrod. There’s fights over who gets to push him in his wheelchair,” she says.


Online story by Jess Daly

Related Links:
Some of these links may be to sites outside the ABC and as such the ABC has no editorial control over such sites.

Muscular Dystrophy Association
http://www.mda.org.au/specific/mdadmd.html
For more information on the various types of muscular dystrophy
Kerrod’s brave heart
Presenter: Wayne Shearman 

Tuesday, 26 October  2004 

 
Kerrod meets former Australian cricketer Steve Waugh in Sydney 
 
They say special children come to special parents. 

And for Karri-anne and Shane Patterson, this is doubly true. When their six-year-old son Kerrod was diagnosed with Duchenne Muscular Dystrophy (DMD) three years ago, it was a trying time for the family. But Karri-anne was spun into a depression when her youngest son Braydon was diagnosed soon after.

It took just one hour for Karri-anne and Shane’s worst fears to be realised.

“Kerrod was three when we found out he had DMD, the only reason we knew something was wrong was because he couldn’t walk properly and he had enlarged calf muscles. We took him to a paediatrician and within an hour we had the results back. It wasn’t the nicest of times,” Karri-anne recalls.

Normally a genetic disease, DMD brings on general muscle weakness and wasting usually in the pelvis, upper arms and legs first. Survival is rare beyond the early 20s.

“It’s supposed to be a genetic disease that’s passed down through the family, but we don’t have anything so it’s started with us,” Karri-anne says.

“They give sufferers a lifespan of between 15 and 20 years, that’s the part that we found really hard. It doesn’t bother us that he’s in a wheelchair. We also have another son, Braydon, who has the disease as well, which was another shock.”

With so few years under his belt, Kerrod is proving to be an inspiration for his parents.

“He’s the one that keeps us going. When I found out about Braydon, it broke my heart and I didn’t know what to do. I went into a deep depression and I’d have this smiling little face at me every morning saying ‘come on mum, get out of bed’. He’s kept me going and I just decided that I needed to be positive for him,” Karri-anne says.

In fact his ability to be brave in the face of adversity has earned him a TAKE 5 Young Bravehearts award, and mum says he’s always been a positive child.

“I think it’s in his personality, he’s just special. He’s always been like that and it took a little while for me to get used to him trying to keep things positive for everyone else.”

“The other day I was doing my hair in the bathroom and I couldn’t quite get things right. He said ‘mum, what are you doing’ and I explained that I was trying to do my hair without much luck and he said ‘mum you look beautiful the way you are’.”

Karri-anne says Kerrod was excited to meet Australian cricket legend Steve Waugh when the family went to Sydney for the Young Braveheart finals. And he has the rather amusing memories on tape to prove it.

“I let him tape with a video camera we had, he was taping Steve Waugh. And when we had a look at the tape, he had been taping Steve Waugh’s bum for a really long time by accident. He thought it was hilarious.”

Kerrod says that his special video tape was the highlight of his trip and lunchtime is his favourite time at school. Karri-anne says that’s probably because the kids fight over who gets to push him around.

“We’re really lucky because the teachers have taught the kids not to be ignorant, they’ve been taught about all different kinds of disabilities so that they don’t pinpoint Kerrod. There’s fights over who gets to push him in his wheelchair,” she says. 



Online story by Jess Daly

Related Links:
Some of these links may be to sites outside the ABC and as such the ABC has no editorial control over such sites.

Muscular Dystrophy Association
http://www.mda.org.au/specific/mdadmd.html
For more information on the various types of muscular dystrophy

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